Are You Interested in Participating in CH STRONG?

In order to participate in CH STRONG you must be an adult born with a congenital heart defect between 1980 and 1997 in one of 3 states: Arizona, Arkansas, or Georgia (metro Atlanta). 

You or a family member may already have been contacted by one of the three sites regarding your participation.  You can confirm your eligibility to participate by contacting the site in the state where you were born.

If you have your paper survey, please complete the survey and return it to CDC.

Centers for Disease Control and Prevention
4770 Buford Highway
MS E-86 (Attn: Dr. Sherry Farr)
Atlanta, GA 30341

If you lost your paper survey, please contact the site in the state where you were born to receive a new one.

Contact button for Arizona CHD survey participants Arizona
University of Arizona College of Medicine, Department of Pediatrics
arizona@chstrong.org

Contact button for Arkansas CHD survey participants Arkansas
Arkansas Center for Birth Defects Research and Prevention
arkansas@chstrong.org

Contact button for Georgia CHD survey participants Georgia (metropolitan Atlanta)
Metropolitan Atlanta Congenital Defects Program
metroatlanta@chstrong.org

Can I take the survey online?
Unfortunately, this option is no longer available. Please complete the paper survey sent to you in the mail. If you lost your paper survey, please contact the site in the state where you were born to receive a new one.

How long will the survey take?
The CH STRONG survey will take about 20 minutes to complete and respondents will answer questions about their health, quality of life, and access to care. The information will help us identify unmet needs of adults born with a heart condition.  The survey can be completed on paper and returned by mail. 

Why should I participate?
Across the country, thousands of people born with a heart condition are taking part in this survey.  Each participant’s answers are important to us and will add to what we learn about how heart conditions affect adults.  The findings from the survey will help current adults who were born with heart conditions and the future lives of children born with heart conditions.